Variables | Total sample (N = 499) | Clinic sample (n = 318 [63.7%]) | Online sample (n = 181 [36.3%]) | ||
---|---|---|---|---|---|
Mean ± SD (range) or N (%) | Mean ± SD (range) or n (%) | Mean ± SD (range) or n (%) | P-value | Cohen’s d coefficient | |
Age, years | 39.8 ± 11.1 (20–74) | 38.6 ± 10.5 (20–66) | 41.8 ± 11.9 (20–74) | 0.003 | |
Female sex | 199 (39.9) | 101 (31.8) | 98 (54.1) | < 0.001 | |
Marital status: married | 270 (54.1) | 173 (54.4) | 97 (53.6) | 0.861 | |
Employment status: employed or student | 426 (85.4) | 287 (90.3) | 139 (76.8) | < 0.001 | |
Diagnosis: CD | 307 (61.5) | 235 (73.9) | 72 (39.8) | < 0.001 | |
Ileitis | 66 (21.6) | 50 (21.3) | 16 (22.5) | ||
Colitis | 61 (19.9) | 52 (22.1) | 9 (12.7) | ||
Ileocolitis | 179 (58.5) | 133 (56.6) | 46 (64.8) | ||
Diagnosis: UC | 192 (38.5) | 83 (26.1) | 109 (60.2) | < 0.001 | |
Proctitis | 41 (21.6) | 8 (9.6) | 33 (30.8) | ||
Left-sided colitis | 55 (28.9) | 30 (36.1) | 25 (23.4) | ||
Pancolitis | 94 (49.5) | 45 (54.2) | 49 (45.8) | ||
Disease duration, years | 12.1 ± 8.3 (0–43) | 13.4 ± 7.2 (1–40) | 9.9 ± 9.6 (0–43) | < 0.001 | |
Current treatment | |||||
Immunosuppressive drugs | 93 (18.6) | 52 (16.4) | 41 (22.7) | 0.091 | |
Biologics | 331 (66.3) | 246 (77.4) | 85 (47.0) | < 0.001 | |
IBD-SES | |||||
Total score [29–290] | 167.7 ± 44.5 | 158.3 ± 42.9 | 0.021 | 0.21 | |
Managing stress and emotions [9–90] | 46.1 ± 17.4 | 40.1 ± 16.6 | < 0.001 | 0.35 | |
Managing medical care [8–80] | 58.2 ± 16.1 | 59.4 ± 14.7 | 0.397 | 0.08 | |
Managing symptoms and disease [7–70] | 36.9 ± 12.9 | 34.5 ± 12.0 | 0.037 | 0.19 | |
Maintaining remission [5–50] | 26.5 ± 9.0 | 24.3 ± 8.2 | 0.007 | 0.25 | |
DLS | |||||
Total score [18–90] | 31.7 ± 13.4 | 36.9 ± 14.7 | < 0.001 | 0.37 | |
Difficulties of life in society [9–45] | 14.0 ± 6.8 | 17.5 ± 7.9 | < 0.001 | 0.48 | |
Difficulties concerning bowel movements [7–35] | 13.1 ± 5.8 | 13.6 ± 6.0 | 0.336 | 0.09 | |
Decline of vitality or vigor [2-10] | 4.5 ± 2.3 | 5.8 ± 2.2 | < 0.001 | 0.58 |