Table 1 Participants’ self-reported demographics and clinical characteristics
Characteristic | N = 30 |
|---|---|
Country of residence, n (%) | |
United States | 14 (46.7) |
United Kingdom | 12 (40.0) |
France | 4 (13.3) |
Age (years), mean (SD) | 28.4 (5.1) |
Gender, n(%) | |
Female | 22 (73.3) |
Ethnicity, n(%) | |
Asian or Pacific Islander | 18 (60.0) |
Black or African American | 1 (3.3) |
White or Caucasian | 5 (16.6) |
Other | 2 (6.6) |
Not reported | 4 (13.3) |
Education, n(%) | |
School/college-level qualification | 4 (13.3) |
Graduate degree or equivalent | 13 (43.3) |
Postgraduate degree or equivalent | 9 (30.0) |
Other formal qualification | 4 (13.3) |
Age at diagnosis (years), mean (SD) | 1.1 (2.1) |
Age at first blood transfusion (years), mean (SD) | 2.2 (3.4) |
Number of RBCTs in past year (0–1 year ago), mean (SD) | 18.0 (8.2) |
Number of RBCTs in the year before (1–2 years ago), mean (SD) | 18.7 (7.7) |
TDT symptoms experienced in past 3 months, n(%) | |
Tiredness or fatigue | 30 (100) |
Weakness | 27 (90.0) |
Shortness of breath | 22 (73.3) |
Tachycardia (fast heartbeat) | 15 (50.0) |
Pain or discomfort | 26 (86.7) |