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Table 1 Basic characteristics of the included studies

From: Health-related quality of life and health state utility value in idiopathic pulmonary fibrosis: a systematic review and meta-analysis

Author, Year

Country

Study design

Diagnose standard

DS year

Study period

sample size

Male/

Female

Ages

FVC% predit

Measurement instrument

Ethic

Duke et al. 2024 [31]

USA

prospective cohort

chest computed tomography

NA

2018.9-2021.8

65

51/14

72.0

73.9

CRQ

YES

Sridhar et al. 2024 [32]

USA

prospective cohort

ATS/ERS/JRS

NR

2016–2018

70

47/23

70.4

66.5

SGRQ

YES

Cox et al. 2023 [33]

Australia

prospective cohort

ATS/ERS/JRS/ALAT

2018

2018.8-2019.10

162

99/63

73.8

87.6

EQ-5D

AQoL-8D

SGRQ

YES

Rautajoki et al. 2023 [34]

Finland

prospective cohort

ATS/ERS/JRS/ALAT

2018

2015.4-2017.10

247

263/84

74.3

82.9

15D

YES

Saari et al. 2023 [35]

Finland

case control

HRCT and transbronchial lung biopsy

NA

2015.1-2021.12

68

39/29

67.4

79.95

LCQ

YES

Veit et al. 2023 [36]

Germany

prospective cohort

ATS/ERS

2013

2017.7-2018.8

13

10/3

65.3

68.5

SGRQ

KBILD

YES

Zheng et al. 2023 [37]

Australia

prospective cohort

ATS/ERS/JRS/ALAT

2018

2018.8-2019.12

157

95/62

74.0

79.9

HSUs

YES

Park et al. 2022 [38]

South Korea

prospective cohort

ATS/ERS/JRS/ALAT

2015

2017.6-2018.9

70

52/18

67.9

77.25

EQ-5D

SGRQ

CQLQ

YES

Phua et al. 2022 [39]

Singapore

cross-sectional

ATS/ERS

2013

2019.12-2022.1

27

NR

NR

78.1

EQ-5D

KBILD

YES

Reinaldo et al. 2022 [40]

Brazil

cross-sectional

pulmonary function with lung biopsy or HRCT

NA

NR

27

19/8

60.7

51.10

SGRQ

YES

Scallan et al. 2022 [41]

USA

cross-sectional

ATS/ERS/JRS/ALAT

2018

2019.9.-2019.10

100

67/33

71.2

70.5

EQ-5D

KBILD

YES

Wuyts et al. 2022 [42]

multi-country

prospective cohort

ATS/ERS/JRS/ALAT

2011

2013.10-2016.1

277

213/64

69.6

80.6

EQ-5D

SGRQ

YES

Bloem et al. 2021 [43]

Netherlands

cross-sectional

ATS/ERS/JRS/ALAT

2011

2018.5-2019.3

61

47/14

73.7

82.8

EQ-5D

YES

Chen et al. 2021 [44]

Canada

prospective cohort

ATS/ERS/JRS/ALAT

2018

2015.1-2020.3

539

413/126

69.0

76

EQ-5D

SGRQ

YES

Cox et al. 2021 [45]

Australia

prospective cohort

ATS/ERS/JRS/ALAT

2018

2018.8-2019.10

155

99/56

74.0

87.5

EQ-5D

YES

Ebihara et al. 2021 [46]

Japan

cross-sectional

ATS/ERS/JRS/ALAT

2011

2014.7-2017.7

27

21/6

76.1

72.0

SGRQ

YES

Gao et al. 2021 [47]

Sweden

prospective cohort

ATS/ERS/JRS/ALAT

2011

2014.9-2020.4

662

490/172

72.8

72.4

KBILD

YES

Kanjrawi et al. 2021 [48]

Australia

prospective cohort

Medical records

NA

2019.8-2019.10

27

19/8

71.0

77

EQ-5D

KBILD

YES

Machado et al. 2021 [49]

Germany

prospective cohort

ATS/ERS/JRS/ALAT

2011

2012.3-2017.10

98

84/14

68.0

64

SF-36

YES

Prior et al. 2021 [50]

Denmark

prospective cohort

ATS/ERS/JRS/ALAT

2011

2016.8-2018.3

150

122/28

72.9

87.2

SGRQ-I

YES

Behr et al. 2020 [51]

Germany

prospective cohort

ATS/ERS/JRS/ALAT

2011

2012.12-2018.12

588

476/112

69.8

68.6

EQ-5D

YES

Bloem et al. 2020 [52]

Netherlands

cross-sectional

ATS/ERS/JRS/ALA

2011

2018.5-2019.3

59

45/14

73.7

83.2

EQ-5D

QoL-RIQ

YES

Case et al. 2020 [53]

USA

retrospective cohort

ATS/ERS/JRS/ALAT

2011

2014.6-2017.10

662

496/166

70.0

69.8

EQ-5D

SGRQ

SF-12

YES

Durheim et al. 2020 [54]

Norway

cross-sectional

ATS/ERS/JRS/ALAT

2011

2017.9-2018.10

57

41/16

71.0

73

EQ-5D

SGRQ

KBILD

LCQ

YES

Leuschner et al. 2020 [55]

Germany

prospective cohort

ATS/ERS/JRS/ALAT

2011

2012.11-2019.12

1009

814/195

75.3

67.89

EQ-5D

SGRQ

YES

Moor et al. 2020 [56]

Netherlands

RCT

ATS/ERS/JRS/ALAT

2018

2018.1-2019.1

46

39/7

68.6

82.6

EQ-5D

KBILD

PESaM

YES

O’Brien et al. 2020 [57]

USA

Cross-Sectional

ATS/ERS/JRS/ALAT

2011

2014.6-2018.7

859

639/220

70.0

69.7

EQ-5D

SGRQ

SF-12

YES

Prior et al. 2020 [58]

Denmark

prospective cohort

ATS/ERS/JRS/ALAT

2011

2016.8-2019.3

150

122/28

72.9

87.2

SGRQ

KBILD

SGRQ-I

YES

Tzouvelekis et al. 2020 [59]

Greece

prospective cohort

ATS/ERS/JRS/ALAT

2011

2016–2017

98

80/18

70.8

77.0

SGRQ

KBILD

YES

Eken et al. 2019 [60]

Turkey

cross-sectional

ATS/ERS/JRS/ALAT

2011

2016.10-2016.10

40

31/9

65.1

86.60

SGRQ

YES

Kalafatis et al. 2019 [61]

Sweden

cross-sectional

ATS/ERS/JRS/ALAT

2011

2014.9-2017.12

384

250/98

71.8

70.2

KBILD

YES

Pan et al. 2019 [62]

China

cross-sectional

ATS/ERS/JRS/ALAT

2011

2014.1-2015.8

20

14/6

58.3

NR

SGRQ

ATAQ-IPF

YES

Prior et al. 2019 [63]

Denmark

prospective cohort

ATS/ERS/JRS/ALAT

2011

2016.8-2018.3

150

122/28

72.9

87.2

KBILD

SF-36

SGRQ-I

YES

Capparelli et al. 2018 [64]

Argentina

prospective cohort

ATS/ERS/JRS/ALAT

2011

2026.01-2017.01

23

18/5

71.9

68.9

SGRQ-I

YES

Mavroudi et al. 2018 [65]

Greece

case control

ATS/ERS

2000

2013.11-2015.11

19

11/8

69.8

75.6

SF-36

YES

Nolan et al. 2018 [66]

UK

prospective cohort

ATS/ERS/JRS/ALAT

2011

2015.01-2015.12

65

58/7

72.0

73.2

KBILD

YES

Wuyts et al. 2018 [67]

multi-country

prospective cohort

ATS/ERS/JRS/ALAT

2011

2013.10-2016.1

277

213/64

69.6

80.6

EQ-5D

SGRQ

YES

Furukawa et al. 2017 [68]

Japan

Retrospective cohort

ATS/ERS/JRS/ALAT

2011

2007.5-2012.12

182

155/27

65.6

79.7

SGRQ

YES

Kreuter et al. 2017 [69]

Germany

prospective cohort

ATS/ERS/JRS/ALAT

2011

NR

623

481/142

69.6

67.5

EQ-5D

SGRQ

YES

Magnani et al. 2017 [70]

Italy

prospective cohort

ATS/ERS/JRS/ALAT

2011

2015.1-2015.6

18

8/10

66.5

NR

PGWBI

NR

Matsuda et al. 2017 [71]

Japan

retrospective cohort

ATS/ERS/JRS/ALAT

2011

2009.4-2013.3

121

99/22

66.8

81.1

SGRQ

YES

Matsuda et al. 2017 [72]

Japan

cross-sectional

ATS/ERS/JRS/ALAT

2011

2011.7-2014.10

106

90/16

67.1

81.9

SGRQ

YES

Natalini et al. 2017 [73]

USA

cross-sectional

ATS/ERS/JRS/ALAT

2011

2010.3-2015.9

50

39/11

70.8

70.3

SF-36

YES

Sokai et al. 2017 [74]

Japan

prospective cohort

ATS/ERS/JRS/ALAT

2011

2013.4-2014.10

52

44/8

72.0

86.1

SF-36

SGRQ-I

YES

Wapenaar et al. 2017 [75]

multi-country

prospective cohort

ATS/ERS

2000

2013.12-2016.4

108

84/24

70.5

72.5

EQ-5D

SGRQ

KBILD

YES

Atkins et al. 2016 [76]

UK

cross-sectional

ATS/ERS/JRS/ALAT

2011

2012.9-2014.3

77

59/18

76.4

84.3

EQ-5D

SGRQ

KBILD

YES

Bahmer et al. 2016 [77]

Germany

prospective cohort

ATS/ERS/JRS/ALAT

2011

2013.1-2013.10

48

36/12

67.1

75.4

SGRQ

SF-12

YES

Kotecha et al. 2016 [78]

UK

prospective cohort

ATS/ERS/JRS/ALAT

2011

2013.1-2014.3

75

58/17

76.4

83.6

SGRQ

YES

Lubin et al. 2014 [79]

USA

prospective cohort

ATS/ERS

2000

2010.1-2012.8

102

76/26

70.0

70.0

SF-36

YES

Nishiyama et al. 2012 [80]

Japan

retrospective cohort

ATS/ERS

2000

2000.4-2005.7

87

77/10

66.3

75

SGRQ

YES

Noth et al. 2012 [81]

USA

RCT

ATS/ERS/JRS/ALAT

22,011

2009.12-2011.4

145

106/39

66.9

58.79

EQ-5D

SGRQ

SF-36

YES

Swigris et al. 2012 [82]

USA

retrospective cohort

ATS/ERS

2005

NR

180

83/97

69.0

56.8

SGRQ

SF-36

NR

Elfferich et al. 2011 [83]

Netherlands

cross-sectional

Medical records

NA

2007.10

49

31/18

63.1

82.9

WHOQOL-100

YES

King et al. 2011 [84]

multi-country

RCT

ATS/ERS

2000

2007.1-2008.10

407

296/111

63.8

74.9

EQ-5D

SF-36

YES

Jones et al. 2011 [85]

UK

case control

ATS/ERS

2002

NR

27

17/10

71.7

80.4

LCQ

YES

Verma et al. 2011 [86]

Canada

cross-sectional

ATS/ERS

2000

2003.10-2008.3

137

90/47

59.4

61.7

SGRQ

SF-36

YES

Han et al. 2010 [87]

USA

cross-sectional

ATS/ERS

2000

2003-2009.1

221

147/74

63.3

62.77

SGRQ

SF-12

YES

Key et al. 2010 [88]

UK

cross-sectional

ATS/ERS

2002

2001–2007

19

14/5

70.8

78.5

LCQ

YES

Swigris et al. 2010 [89]

USA

prospective cohort

ATS/ERS

2000

NR

95

82/13

69.3

65

ATAQ-IPF

NR

Zisman et al. 2010 [90]

USA

RCT

ATS/ERS

2000

2007.9-2009.3

89

75/14

69.8

54.89

EQ-5D

SGRQ

SF-36

YES

Krishnan et al. 2008 [91]

USA

cross-sectional

ATS/ERS

2000

NR

41

22/19

67.7

68.9

SF-36

YES

Peng et al. 2008 [92]

China

cross-sectional

ATS/ERS

2000

2002.1-2007.5

68

54/14

64.0

66

SGRQ

YES

Tomioka et al. 2007 [93]

Japan

cross-sectional

ATS/ERS

2000

2000.3-2005.12

46

32/14

69.9

71

SF-36

YES

Zimmermann et al. 2007 [94]

Brazil

cross-sectional

ATS/ERS

2000

NR

20

12/8

61.5

70.4

SGRQ

SF-36

NR

Nishiyama et al. 2005 [95]

Japan

prospective cohort

ATS/ERS

2000

2000.1-2002.12

41

35/6

64.0

76.6

SGRQ

NR

Tzanakis et al. 2005 [96]

Greece

cross-sectional

ATS/ERS

2000

1994.1-1999.7

25

21/4

66.0

68.8

SGRQ

YES

Baddini et al. 2002 [97]

Brazil

cross-sectional

Lung biopsy and CT

NA

NR

30

18/12

58.6

61.9

SF-36

YES

De Vries et al. 2001 [98]

Netherlands

cross-sectional

ATS/ERS

2000

NR

41

15/26

63.5

NR

WHOQOL-100

NR

  1. NOTE Abbreviations: AQoL-8D: Assessment of Quality of Life- eight-dimension; ATS/ERS: American Thoracic Society/European Respiratory Society: ATS/ERS/JRS/ALAT: American Thoracic Society/European Respiratory Society/Japanese Respiratory Society/Latin American Thoracic Society; ATAQ-IPF: A Tool to Assess Quality of life in IPF; CRQ: Chronic Respiratory Questionnaire; CQLQ:, cough quality of life questionnaire; DS: Diagnose standard; EQ-5D: EuroQoL Five Dimensions Questionnaire; HSUs: Health state utilities; IPF: Idiopathic pulmonary fibrosis; KBILD: King’s Brief Interstitial Lung Disease; LCQ: Leicester Cough Questionnaire; NA: Not appliable; NR: Not reported; PESaM: = Patient Experiences and Satisfaction with Medication questionnaire; PGWBI: Psychological General Well-Being Index; QoL-RIQ: Quality of Life for Respiratory Illness Questionnaire; RCT: Random control study; SF-12: 12-item short-form health survey; SF-36: Short Form-36; SGRQ: St. George’s Respiratory Questionnaire; SGRQ-I: IPF specific version of SGRQ; WHOQoL-100: World Health Organization Quality of Life assessment 100; 15D: The 15-Dimension Questionnaire