A novel child-centred core palliative care outcome measure for use in clinical practice and research: findings from a multinational validation study

Table 1 Participants’ characteristics for the quantitative cohort (n = 434)

Variable		Kenya (n = 99)		Uganda (n = 233)		South Africa (n = 102)
Age	Mean (SD)- self report version	7.9(2.5)		10.8(3.7)		7.4(3.9)
Age	Mean (SD)-proxy report version	3(2.4)		2.6(2.3)		2.8(3.4)
sex		n	%	n	%	n	%
	Female	44	44.4	114	48.9	63	61.76
	Male	55	55.6	119	51.1	39	38.2
place of care
	In patient	42	42.4	70	30.0	101	99.0
	Out patient	57	57.6	163	69.96	1	1.0
Primary diagnosis	HIV/AIDS	44	44.4	177	76.3	7	6.9
	Cancer	16	16.2	52	22.4	21	20.6
	Sickle cell	39	39.4	1	0.4	4	3.9
	Epilepsy	0	0	2	0.9	23	22.5
	Renal failure	0	0	0	0	3	2.9
	Cardiac disease	0	0	0	0	19	18.6
	TB	0	0	0	0	6	5.9
	other	0	0	0	0	19	18.6
Location of home
	Rural	47	47.5	156	66.9	13	12.7
	Urban	52	52.5	77	33.1	89	87.3
Relationship of caregiver with child	Mother	82	82.8	117	50.2	87	85.3
	Father	7	7.1	15	6.4	6	5.9
	Other relative	5	5.1	32	13.7	2	2.0
	Grand parents	4	4.0	37	15.9	3	2.9
	Auntie/uncle	1	1.0	32	13.7	4	3.9
Language used	Luo	76	76.8
	Kiswahili	21	21.2
	English	2	2.0	58	25	44	43.1
	Zulu	0	0	0	0	31	30.4
	Xhosa	0	0	0	0	27	26.5
	Luganda	0	0	174	75	0	0

ISSN: 1477-7525