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Table 2 Completeness of Data based on the repeated measures cohort

From: A novel child-centred core palliative care outcome measure for use in clinical practice and research: findings from a multinational validation study

Item

n(children)

T1 (n = 302)

T2(n = 297)

T3 (n = 285

T4(n = 279)

Child-oriented items

Missing values: child-reported(caregiver-reported)

Missing values: child-reported(caregiver-reported)

Missing values: child-reported(caregiver-reported)

Missing values: child-reported(caregiver-reported)

Item 1 pain

0 (0)

0(0)

0 (3)

0 (0)

Item 2 other body

0 (0)

0 (0)

0 (0)

2 (0)

Item 3 eating

0 (0)

0(0)

0(0)

2(0)

Item 4 cried

1 (0)

1 (0)

1 (0)

3 (0)

Item 5 happy

0 (1)

0 (0)

0 (0)

2 (1)

Item 6 playing

1 (2)

0 (1)

6(1)

7 (1)

Item 7 questions answered

3(57)

2(*)

8(*)

8(*)

 

n (family caregivers)

Caregiver/family-oriented items

N = 299

N = 282

N = 272

N = 270

Item 8 worry

2

0

3

5

Item 9 Shared own feelings

2

0

4

5

Item 10 Received adequate info

1

0

5

5

Item 11 Received enough help and advice

5

2

0

0

Item 13 Family confidence

1

1

3

6

  1. *no further analysis was conducted because of the high number of missing values resulting into a low item coverage