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Table 5 Test–retest reliability (children n = 152, carers n = 127)

From: A novel child-centred core palliative care outcome measure for use in clinical practice and research: findings from a multinational validation study

In patients (152)

Child version (n = 33)

 

Proxy version (n = 119)

Child items

   

Child items

   
 

Weighted Kappa statistic

Agreement within one score

Expected agreement

 

Weighted Kappa statistic

Agreement within one score

Expected agreement

Item 1 pain

0.5364

80.63%

58.20%

Q1

0.5239

81.87%

61.91%

Item 2 other body symptoms

0.4995

80.63%

61.29%

Q2

0.4791

77.33%

56.49%

Item 3 eating

0.5741

82.50%

58.91%

Q3

0.6421

83.73%

54.55%

Item 4 cried

0.4237

86.72%

76.95%

Q4

0.3477

76.53%

64.02%

Item 5 happy

0.4863

78.75%

58.63%

Q5

0.5950

81.74%

54.92%

Item 6 playing

0.4348

73.75%

53.55%

Q6

0.5861

81.08%

54.29%

Item 7 questions answered

0.5224

80.00%

58.12%

Q7

0.3613

71.91%

56.03%

Family items (n = 127)

 Item 8 worry

0.5047

76.52%

52.60%

    

 Item 9 Shared own feelings

0.6814

88.63%

64.33%

    

 Item 10 Received adequate info

0.6487

88.55%

67.41%

    

 Item 11 Received enough help and advice

0.6942

88.89%

63.67%

    

 Item 12 Family confidence

0.7086

95.68%

85.19%

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