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  1. Sickle cell disease is an inherited chronic hematological disorder with an average lifespan of fifty years. The human cost of sickle cell disease includes missed school days, occupational opportunities, social...

    Authors: Aisha A. K. Bruce, Gregory M. T. Guilcher, Sunil Desai, Tony H. Truong, Michael Leaker, Dominic A. Alaazi, Sasia J. V. Pedersen and Bukola Salami
    Citation: Health and Quality of Life Outcomes 2022 20:118
  2. Oral health literacy is the degree to which individuals have the capacity to obtain, process, and understand basic health information and services needed to make appropriate oral health decisions. However, sci...

    Authors: Sofia Rafaela Maito Velasco, Caroline Moraes Moriyama, Marcelo Bonecker, Luciane Butini, Jenny Abanto and José Leopoldo Ferreira Antunes
    Citation: Health and Quality of Life Outcomes 2022 20:117
  3. Patients who suffered from ankylosing spondylitis (AS) or non-radiographic axial spondyloarthritis (nr-axSpA) often have poor quality of life (QoL) and there has been a substantial increase in research on acce...

    Authors: Qian He, Jing Luo, Jiaqi Chen, Jianying Yang, Chuanhui Yao, Caiqin Xu and Qingwen Tao
    Citation: Health and Quality of Life Outcomes 2022 20:116
  4. Authors: Maren Schick, Ariane Germeyer, Bettina Böttcher, Stephanie Hecht, Magdalena Geiser, Sabine Rösner, Monika Eckstein, Kilian Vomstein, Bettina Toth, Thomas Strowitzki, Tewes Wischmann and Beate Ditzen
    Citation: Health and Quality of Life Outcomes 2022 20:115

    The original article was published in Health and Quality of Life Outcomes 2022 20:86

  5. Cognitive impairment is common in first-episode psychosis patients and often associated with poor quality of life and functional impairment. However, most literature on this association is from high income cou...

    Authors: Emmanuel K. Mwesiga, Andrew S. Ssemata, Joy Gumikiriza, Angel Nanteza, Anne Jacqueline Nakitende, Juliet Nakku, Dickens Akena and Noeline Nakasujja
    Citation: Health and Quality of Life Outcomes 2022 20:113
  6. To study development trajectories to 34 years of age of health-related quality of life (HRQoL) and subjective health complaints in extremely preterm (EP) born subjects with and without disability, and to compa...

    Authors: Merete Røineland Benestad, Jorunn Drageset, Geir Egil Eide, Maria Vollsæter, Thomas Halvorsen and Bente Johanne Vederhus
    Citation: Health and Quality of Life Outcomes 2022 20:112
  7. We aimed to create a standardized cross-cultural adaptation of the simplified Chinese version of VISA-A, test its reliability and validity and conduct exploratory factor analysis on the correlation between items.

    Authors: Xiaoxian Tu, Zhiyuan Tu, Wei Lin and Zhe Wu
    Citation: Health and Quality of Life Outcomes 2022 20:111
  8. The Child Perception questionnaire 11–14 (CPQ 11–14) is an efficient tool for assessment of oral health-related quality of life (OHRQoL). This questionnaire has been briefed to 16 items (CPQ11–14 ISF-16) to fa...

    Authors: Tahereh Baherimoghadam, Shahram Hamedani, Navid Naseri and Alireza Ghafoori
    Citation: Health and Quality of Life Outcomes 2022 20:110
  9. Drug abuse has many negative effects not only on individuals but also on society. Nowadays, researchers pay a lot of attention to quality of life of drug addicts. However, there are few scales available to mea...

    Authors: Zilin Ma, Yuxi Liu, Chonghua Wan, Jianming Jiang, Xiaomei Li and Ying Zhang
    Citation: Health and Quality of Life Outcomes 2022 20:109
  10. Interpretation of health-related quality of life (QOL) outcomes requires improved methods to control for the effects of multiple chronic conditions (MCC). This study systematically compared legacy and improved...

    Authors: Mindy L. McEntee, Barbara Gandek and John E. Ware
    Citation: Health and Quality of Life Outcomes 2022 20:108
  11. To identify instruments used to measure parents’ Quality of Life (QoL) during pregnancy and the postpartum period, and to describe their characteristics and psychometric properties.

    Authors: Malene Brekke, Rigmor C. Berg, Amin Amro, Kari Glavin and Trude Haugland
    Citation: Health and Quality of Life Outcomes 2022 20:107
  12. Due to limited capability to function in post-injury daily life injury, survivors need to be reliably assessed without need to commute more than necessary. The key action is to determine the level of functioni...

    Authors: Nasrin Shahedifar, Homayoun Sadeghi-Bazargani, Mohammad Asghari-Jafarabadi, Mostafa Farahbakhsh and Shahrzad Bazargan-Hejazi
    Citation: Health and Quality of Life Outcomes 2022 20:106
  13. For nearly a decade, value sets for the EQ-5D-Y were not available, reflecting challenges in valuing child HRQoL. A methodological research programme led to publication of a valuation protocol in 2020, which w...

    Authors: N. Devlin, T. Pan, S. Kreimeier, J. Verstraete, E. Stolk, K. Rand and M. Herdman
    Citation: Health and Quality of Life Outcomes 2022 20:105
  14. Online longitudinal surveys may be subject to potential biases due to sample attrition. This study was designed to identify potential predictors of attrition using a longitudinal panel survey collected during ...

    Authors: Tianzhou Yu, Jiafan Chen, Ning Yan Gu, Joel W. Hay and Cynthia L. Gong
    Citation: Health and Quality of Life Outcomes 2022 20:104
  15. Food-related quality of life is considerably impaired in patients with inflammatory bowel disease (IBD) and should be widely measured in research and clinical practice. This study aims to translate the FR-QoL-...

    Authors: Nazlı Nur Aslan Çin, Kevin Whelan and Ayşe Özfer Özçelik
    Citation: Health and Quality of Life Outcomes 2022 20:103
  16. The 12-item MOS Short-form Health Survey version 2 (SF-12v2) and the Veterans RAND 12-item Health Survey (VR-12) are generic health-related quality of life measures. They are fairly similar, but their differen...

    Authors: Daniel Y. T. Fong, Bobo K. Y. Chan, Sha Li, C. H. Wan and Lewis E. Kazis
    Citation: Health and Quality of Life Outcomes 2022 20:102
  17. Some capability dimensions may be more important than others in determining someone’s well-being, and these preferences might be dependent on ill-health experience. This study aimed to explore the relative pre...

    Authors: Timea Mariann Helter, Alexander Kaltenboeck, Josef Baumgartner, Franz Mayrhofer, Georg Heinze, Andreas Sönnichsen, Johannes Wancata and Judit Simon
    Citation: Health and Quality of Life Outcomes 2022 20:99
  18. Mapping the Minnesota Living with Heart Failure Questionnaire (MLHFQ) to SF-6Dv2 in Chinese patients with chronic heart failure, and to obtain the health utility value for health economic assessment.

    Authors: Jianni Cong, Yanbo Zhu, Jinhang Du, Lin Lin, Yuan He, Qian Zhang, Tan Ooh Chye, Xiaoying Lv, Wenqiong Liu, Xinrui Wu, Fanghui Ma, Xinyuan Zhao, Yuqiong Li and Liqun Long
    Citation: Health and Quality of Life Outcomes 2022 20:98
  19. Utility instruments are used to assess patients’ health-related quality of life for cost-utility analysis (CUA). However, for cancer patients, the dimensions of generic utility instruments may not capture all ...

    Authors: Helen McTaggart-Cowan, Madeleine T. King, Richard Norman, Daniel S. J. Costa, A. Simon Pickard, Rosalie Viney and Stuart J. Peacock
    Citation: Health and Quality of Life Outcomes 2022 20:97
  20. SF-6Dv2, the latest version of SF-6D, has been developed recently, and its measurement properties remain to be evaluated and compared with the EQ-5D-5L. The aim of this study was to assess and compare the meas...

    Authors: Shitong Xie, Dingyao Wang, Jing Wu, Chunyu Liu and Wenchen Jiang
    Citation: Health and Quality of Life Outcomes 2022 20:96
  21. The PROMIS-57 is a commonly used self-reported instrument to solve the lack of generalizable and universal measures required to evaluate common symptoms and functions from patients’ perspectives. This study ai...

    Authors: Tingting Cai, Fulei Wu, Qingmei Huang, Chunfang Yu, Yang Yang, Feixia Ni and Changrong Yuan
    Citation: Health and Quality of Life Outcomes 2022 20:95
  22. The Patient-Reported Outcomes Measurement Information System 29-item Profile (PROMIS-29) has been widely used to measure health outcomes from the patient’s perspective. It has not been validated in adults with...

    Authors: Wanbing Huang, Qiansheng Wu, Yufen Zhang, Chong Tian, Haishan Huang, Sufang Huang, Yanrong Zhou, Jing He and Hui Wang
    Citation: Health and Quality of Life Outcomes 2022 20:94
  23. Data on health state utility in Duchenne muscular dystrophy (DMD) are few. This study estimated mean utility values by age, ambulatory status and over time, and investigated which aspects of health-related qua...

    Authors: Shelagh M. Szabo, Ivana F. Audhya, Basia Rogula, David Feeny and Katherine L. Gooch
    Citation: Health and Quality of Life Outcomes 2022 20:93
  24. Previous studies have shown that patients with different lumbar spine diseases report different SF-36 profiles, but data on the stability of the SF-36 profiles are limited. The primary aim of the current study...

    Authors: Anders Joelson, Freyr Gauti Sigmundsson and Jan Karlsson
    Citation: Health and Quality of Life Outcomes 2022 20:92
  25. Data on mental health improvement after cardiac rehabilitation (CR) are contradictory. The aim was to examine the mental and psycho-social health of patients admitted to our rehabilitation center following hos...

    Authors: Felix Angst, Raoul D. Giger, Susanne Lehmann, Peter S. Sandor, Peter Teuchmann and Adam Csordas
    Citation: Health and Quality of Life Outcomes 2022 20:91
  26. Patients with multiple long-term conditions often face a variety of challenges arising from the requirements of their health care. Knowledge of perceived treatment burden is crucial for optimizing treatment. I...

    Authors: Josefine Schulze, Amanda Breckner, Polly Duncan, Martin Scherer, Nadine Janis Pohontsch and Dagmar Lühmann
    Citation: Health and Quality of Life Outcomes 2022 20:90
  27. The RAND-36 and RAND-12 (equivalent to versions 1 of the SF-36 Health Survey and SF-12 Health Survey, respectively) are widely used measures of health-related quality of life. However, there are diverging view...

    Authors: John Roger Andersen, Kyrre Breivik, Inger Elise Engelund, Marjolein M. Iversen, Jorunn Kirkeleit, Tone Merete Norekvål, Kjersti Oterhals and Anette Storesund
    Citation: Health and Quality of Life Outcomes 2022 20:89
  28. Self-report is the standard for measuring people’s health-related quality of life (HRQoL), including children. However, in certain circumstances children cannot report their own health. For this reason, childr...

    Authors: Titi Sahidah Fitriana, Fredrick Dermawan Purba, Elly Stolk and Jan J. V. Busschbach
    Citation: Health and Quality of Life Outcomes 2022 20:88
  29. Dermatology Life Quality Index (DLQI) scores are used in many countries as access and reimbursement criteria for costly dermatological treatments. In this study we examined how time trade-off (TTO) utility val...

    Authors: Gábor Ruzsa, Fanni Rencz and Valentin Brodszky
    Citation: Health and Quality of Life Outcomes 2022 20:87
  30. Endometriosis is often associated with severe dysmenorrhea, pelvic pain and dyspareunia and has a high impact on daily life as well as sexuality. Quality of partnership positively influences the course of vari...

    Authors: Maren Schick, Ariane Germeyer, Bettina Böttcher, Stephanie Hecht, Magdalena Geiser, Sabine Rösner, Monika Eckstein, Kilian Vomstein, Bettina Toth, Thomas Strowitzki, Tewes Wischmann and Beate Ditzen
    Citation: Health and Quality of Life Outcomes 2022 20:86

    The Correction to this article has been published in Health and Quality of Life Outcomes 2022 20:115

  31. Respondents in a health valuation study may have different sources of error (i.e., heteroskedasticity), tastes (differences in the relative effects of each attribute level), and scales (differences in the abso...

    Authors: Suzana Karim, Benjamin M. Craig and Catharina G. M. Groothuis-Oudshoorn
    Citation: Health and Quality of Life Outcomes 2022 20:85
  32. In settings with high antiretroviral therapy coverage, numerous health-related issues continue to undermine the health and health-related quality of life (HRQoL) of people living with HIV (PLHIV). As part of a...

    Authors: Kelly Safreed-Harmon, Maria J. Fuster-RuizdeApodaca, Marta Pastor de la Cal and Jeffrey V. Lazarus
    Citation: Health and Quality of Life Outcomes 2022 20:84
  33. Decisions about how to manage bothersome symptoms of chronic illness are complex and influenced by factors related to the patient, their illness, and their environment. Naturalistic decision-making describes d...

    Authors: Shayleigh Dickson Page, Christopher Lee, Subhash Aryal, Kenneth Freedland, Anna Stromberg, Ercole Vellone, Heleen Westland, Douglas J. Wiebe, Tiny Jaarsma and Barbara Riegel
    Citation: Health and Quality of Life Outcomes 2022 20:83
  34. In public health context, oncology is associated with severe negative impact on patients and on their relatives’ quality of life. Over the last decades, survival has remained at 50% worldwide for some tumor lo...

    Authors: Augusta Silveira, Teresa Sequeira, Joaquim Gonçalves and Pedro Lopes Ferreira
    Citation: Health and Quality of Life Outcomes 2022 20:82
  35. Quality of life (QOL) is a good indicator of lifespan, especially for individuals who are suffering from a particular illness. QOL among patients with diabetes mellitus (DM) could be used for further implement...

    Authors: Ratipark Tamornpark, Suphaphorn Utsaha, Tawatchai Apidechkul, Dunlayaphap Panklang, Fartima Yeemard and Peeradone Srichan
    Citation: Health and Quality of Life Outcomes 2022 20:81
  36. Two EQ-5D-3L (3L) value sets (developed in 2014 and 2018) co-exist in China. The study examined the level of agreement between index scores for all the 243 health states derived from them at both absolute and ...

    Authors: Ruo-Yu Zhang, Wei Wang, Hui-Jun Zhou, Jian-Wei Xuan, Nan Luo and Pei Wang
    Citation: Health and Quality of Life Outcomes 2022 20:80
  37. People living with HIV/AIDS (PLWHA) are frequently confronted with severe social issues such as rejection, abandonment, criticism, and stigma. This would negatively affect their quality of life. Several studie...

    Authors: Nebiyu Mengistu, Habtamu Endashaw Hareru, Seid Shumye, Solomon Yimer, Daniel Sisay, Abdene Weya Kaso, Temesgen Muche, Chalachew Kassaw, Negasa Eshete Soboksa, Wondwosen Molla, Alemayehu Molla and Bereket Duko
    Citation: Health and Quality of Life Outcomes 2022 20:77
  38. The diagnosis of a neurodegenerative disease (ND) produces profound changes in the quality of life of the affected families. Despite the vital importance of these processes, the scientific literature has addre...

    Authors: Alba Aza, María Gómez-Vela, Marta Badia, M. Begoña Orgaz, Eva González-Ortega, Isabel Vicario-Molina and Estrella Montes-López
    Citation: Health and Quality of Life Outcomes 2022 20:76
  39. Ulcerative colitis (UC) and Crohn’s disease (CD) are associated with a range of symptoms that adversely affect health-related quality of life. This research aimed to develop and validate two patient-reported o...

    Authors: Arpita Nag and Beverly Romero
    Citation: Health and Quality of Life Outcomes 2022 20:75
  40. Authors: Luca Barni, María Ruiz‑Muñoz, Manuel Gonzalez‑Sanchez, Antonio I. Cuesta‑Vargas, Jose Merchan‑Baeza and Marco Freddolini
    Citation: Health and Quality of Life Outcomes 2022 20:74

    The original article was published in Health and Quality of Life Outcomes 2021 19:259

  41. It is estimated that, worldwide, 9% of deaths occur as a result of insufficient physical activity (PA) practice. Practicing PA can prevent and/or reduce the deleterious effects of different types of diseases a...

    Authors: Catarina Covolo Scarabottolo, William Rodrigues Tebar, Luis Alberto Gobbo, David Ohara, Aline Duarte Ferreira, Daniel da Silva Canhin and Diego Giulliano Destro Christofaro
    Citation: Health and Quality of Life Outcomes 2022 20:71
  42. While different measures have been validated and used to assess the oral health related quality of life (OHRQoL) of children and adolescents, no previous study has tested the psychometric performance of OHRQoL...

    Authors: Manu Raj Mathur, Deepti Nagrath, Huda Yusuf, Vijay Kumar Mishra and Georgios Tsakos
    Citation: Health and Quality of Life Outcomes 2022 20:70
  43. We sought to determine the association between mental stress-induced myocardial ischaemia (MSIMI) and quality of life (QoL) in patients with coronary artery disease (CAD) after coronary revascularization.

    Authors: Nan Nan, Wei Dong, Bingyu Gao, Feihuan Cui, Zhi Chang, Jian Jiao, Huijuan Zuo, Hongzhi Mi, Xiantao Song, Shuzheng Lyu and Hongjia Zhang
    Citation: Health and Quality of Life Outcomes 2022 20:69

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