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  1. Children of female sex workers (FSWs) in Bangladesh grow up in a challenging socio-economic environment characterized by parental separation, substance abuse, alcoholism, and limited access to healthcare, incl...

    Authors: Afia Mahmuda Khan, Taseef Hasan Farook, Sumaiya Zabin Eusufzai, Mehnaj Sharmin, Sabrin Shohid, Tabassum Zerin, Lameea Shahed, Sheikh Jamal Hossain and Mohammad Delwer Hossain Hawlader
    Citation: Health and Quality of Life Outcomes 2025 23:51
    Content type: Research Published on:

  2. Entering the age of 80 or 100, individuals’ functional decline and the need for assistance in daily activities increase dramatically, resulting in an inevitable increase in unmet long-term care (LTC) needs. Un...

    Authors: Jiajun Qiao, Yiwei Qiao, Jialong Tan, Nuo Chen, Nan Peng, Zongfu Mao, Yali Zhao, Chen Chen and Yao Yao
    Citation: Health and Quality of Life Outcomes 2025 23:50
    Content type: Research Published on:

  5. Hip fractures are a significant public health concern due to increasing numbers, high mortality and negative impact on health-related quality of life (HRQoL). Socioeconomic position (SEP) affects various healt...

    Authors: Cato Kjaervik, Jan-Erik Gjertsen, Eva Stensland, Jan Abel Olsen, Christer Kjaervik and Odd Soereide
    Citation: Health and Quality of Life Outcomes 2025 23:47
    Content type: Research Published on:

  6. The Audit of Diabetes-Dependent Quality of Life (ADDQoL) is a widely used instrument for assessing quality of life in Type 2 Diabetes Mellitus (T2DM). However, it does not directly yield health utility values ...

    Authors: Haoran Fang, Tianqi Hong, Xinran Liu, Chang Luo, Yuanyuan Hou and Shitong Xie
    Citation: Health and Quality of Life Outcomes 2025 23:46
    Content type: Research Published on:

  7. The Short-Form 36 (SF-36), a widely used patient-reported outcome (PRO), is a questionnaire completed by patients measuring health outcomes in clinical trials. The PRO scores can be discrete, bounded, and skew...

    Authors: Yirui Qian, Stephen J. Walters, Richard M. Jacques and Laura Flight
    Citation: Health and Quality of Life Outcomes 2025 23:45
    Content type: Research Published on:

  8. While total hip and knee replacement (THR/TKR) surgery are effective measures to restore functioning and reduce pain in patients with severe osteoarthritis (OA), long-term treatment effects vary among patients...

    Authors: Sebastian Fuchs, Lars Schwettmann, Benedict Katzenberger, Alexander Paulus, Boris Michael Holzapfel, Johanna Theresia Biebl and Martin Weigl
    Citation: Health and Quality of Life Outcomes 2025 23:44
    Content type: Research Published on:

  9. In many settings, Tuberculosis (TB) represents a catastrophic life event that substantially impairs a person’s Health-Related Quality of Life (HRQoL). We aimed to measure HRQoL among people with TB in Viet Nam...

    Authors: Luan Nguyen Quang Vo, Rachel Forse, Andrew James Codlin, Huy Ba Huynh, Anja Maria Christine Wiemers, Jacob Creswell, Tushar Garg, Thi Minh Ha Dang, Lan Huu Nguyen, Hoa Binh Nguyen, Luong Van Dinh, Nhung Viet Nguyen, Tom Wingfield, Kristi Sidney Annerstedt, Jad Shedrawy and Knut Lönnroth
    Citation: Health and Quality of Life Outcomes 2025 23:43
    Content type: Research Published on:

  10. Patients with multimorbidity who frequently require healthcare may experience a higher treatment burden. In this study, we investigated whether high perceived treatment burden and low perceived health-related ...

    Authors: Cathrine Bell, Charlotte Weiling Appel, Asger Roer Pedersen and Peter Vedsted
    Citation: Health and Quality of Life Outcomes 2025 23:42
    Content type: Research Published on:

  11. Outcome measurement is pivotal to person-centred assessment, quality improvement and research. Children and young people with life-limiting and -threatening illness have high needs and service use, yet there i...

    Authors: Eve Namisango, Fliss E. M. Murtagh, Katherine Bristowe, Julia Downing, Richard A. Powell, Mackuline Atieno, Margaret Sandham, Zipporah Ali, Michelle Meiring, Faith N. Mwangi-Powell, Melanie Abbas, Lorna K. Fraser, Irene J. Higginson and Richard Harding
    Citation: Health and Quality of Life Outcomes 2025 23:41
    Content type: Research Published on:

  12. Myasthenia gravis is a chronic neuromuscular disease that causes weakness. It’s uncertain whether generic health instruments can adequately capture its impact. This study aimed to develop a scoring system to g...

    Authors: Richard Huan Xu, Richard Norman, Ji Liu and Dong Dong
    Citation: Health and Quality of Life Outcomes 2025 23:40
    Content type: Research Published on:

  13. Health behavior plays a major role in the development, progression, and prognosis of cancer. The Health Behavior Scale for Cancer Patients (HBSCP) can be used to assess the level of health behavior in cancer p...

    Authors: Xiaoxiao Hu, Yang Li, Hongwen Ma, Lina Xiong, Jiping Tan and Yanfei Jin
    Citation: Health and Quality of Life Outcomes 2025 23:39
    Content type: Research Published on:

  14. Sarcopenia is an age-related skeletal muscle disorder associated with deleterious health outcomes. Few studies have examined associations between sarcopenia and quality of life (QoL). Therefore, the purpose of...

    Authors: Emma C. West, Lana J. Williams, Jessica A. Davis and Julie A. Pasco
    Citation: Health and Quality of Life Outcomes 2025 23:38
    Content type: Research Published on:

  15. This scoping review aims to identify and summarise artificial intelligence (AI) methods applied to patient-reported outcome measures (PROMs) for prediction of patient outcomes, such as survival, quality of lif...

    Authors: Zuzanna Wójcik, Vania Dimitrova, Lorraine Warrington, Galina Velikova and Kate Absolom
    Citation: Health and Quality of Life Outcomes 2025 23:37
    Content type: Review Published on:

  16. Atrial fibrillation (AF) stands as the most common cardiac arrhythmia on a global scale with a substantial symptom burden impacting the quality of life (QoL) of patients with AF. Consequently, assessing and mo...

    Authors: Mads Hashiba, Trine Bernholdt Rasmussen, Morten Kjøbek Lamberts, Sebastian Kinnberg Nielsen and Signe Stelling Risom
    Citation: Health and Quality of Life Outcomes 2025 23:36
    Content type: Research Published on:

  17. Patient-reported outcome measures (PROMs) are crucial to capture patients’ health and illness status. Selecting the most suitable PROM to measure self-reported health in a specific study population is essentia...

    Authors: T. M. Norekvål, M. M. Iversen, K. Oterhals, H. Allore, B. Borregaard, T. R. Pettersen, D. R. Thompson, A. D. Zwisler and K. Breivik
    Citation: Health and Quality of Life Outcomes 2025 23:35
    Content type: Research Published on:

  18. Patient-reported outcomes (PROs) are important clinical outcomes widely used as primary and secondary endpoints in clinical studies. However, PRO data often suffers from missing values for various reasons, whi...

    Authors: Minqian Yan, Lizhi Zhou, Chongye Zhao, Chen Shi and Chunquan Ou
    Citation: Health and Quality of Life Outcomes 2025 23:34
    Content type: Research Published on:

  19. To maintain good standards of care, evaluations of policy interventions or potential improvements to care are required. A number of quality of life (QoL) measures could be used but there is little evidence for...

    Authors: Stephen Allan, Stacey Rand, Ann-Marie Towers, Kaat De Corte, Freya Tracey, Elizabeth Crellin, Therese Lloyd, Rachael E. Carroll, Sinead Palmer, Lucy Webster, Adam Gordon, Nick Smith, Gizdem Akdur, Anne Killett, Karen Spilsbury and Claire Goodman
    Citation: Health and Quality of Life Outcomes 2025 23:33
    Content type: Research Published on:

  20. Hemiplegic Shoulder Pain (HSP) is a prevalent post-stroke complication, characterized by paralysis, spasticity, altered sensation, neuropathic pain, shoulder subluxation, and soft tissue injuries such as rotat...

    Authors: Marzieh Khatooni, Leila Dehghankar, Fatemeh Samiei Siboni, Mahdieh Bahrami, Mahya Shafaei, Rahman Panahi and Mohamad Amerzadeh
    Citation: Health and Quality of Life Outcomes 2025 23:32
    Content type: Research Published on:

  21. Cancer treatment greatly impacts physical and psychological functioning of cancer patients, negatively affecting their quality of life (QoL). This Umbrella Review (UR) aims to systematically summarize psycholo...

    Authors: Chiara Marzorati, Viktorya Voskanyan, Diana Sala, Roberto Grasso, Federico Borgogni, Ricardo Pietrobon, Iris van der Heide, Merel Engelaar, Nanne Bos, Augusto Caraceni, Norbert Couspel, Montse Ferrer, Mogens Groenvold, Stein Kaasa, Claudio Lombardo, Aude Sirven…
    Citation: Health and Quality of Life Outcomes 2025 23:31
    Content type: Review Published on:

  22. Research on health-related quality of life (HRQOL) using minimally important differences for cancer care in Asian settings are sparse. This study aimed to describe functional HRQOL trajectories among Colorecta...

    Authors: Jerrald Lau, Cherie Hui Peh, Alyssa Ng, Wei-Ling Koh, Nan Luo and Ker-Kan Tan
    Citation: Health and Quality of Life Outcomes 2025 23:30
    Content type: Research Published on:

  23. The escalating globalization of health assessments underscores a pivotal challenge: Do Quality of Life (QoL) instruments, developed primarily in Western contexts, accurately reflect the perspectives of non-Wes...

    Authors: Yifan Ding, Zhuxin Mao, Zhihao Yang, Siliu Feng and Jan Busschbach
    Citation: Health and Quality of Life Outcomes 2025 23:29
    Content type: Research Published on:

  24. To examine racial and ethnic disparities in Health-Related Quality of Life (HRQOL) in older adults with breast cancer, both pre- and post-diagnosis.

    Authors: Nicki Karimi-Mostowfi, Fang-I Chu, Trudy C. Wu, Matthew J. Farrell, Wisdom Akingbemi and Ann C. Raldow
    Citation: Health and Quality of Life Outcomes 2025 23:28
    Content type: Research Published on:

  25. Quality of life (QoL) is a common indicator of outcomes in people living with diabetes, but the concept of diabetes-related QoL (DRQoL) remains unclear. Clarifying core knowledge of DRQoL was the goal of this ...

    Authors: Anggi Lukman Wicaksana and Nuzul Sri Hertanti
    Citation: Health and Quality of Life Outcomes 2025 23:27
    Content type: Review Published on:

  26. We sought to identify important issues regarding symptoms and impacts of obstructive sleep apnea (OSA), to explore fatigue and sleepiness, and evaluate the content, clarity, and relevance of specific patient r...

    Authors: Helene A. Emsellem, Hilary H. Colwell, John Cronin, Ronald H. Farkas and Susan D. Mathias
    Citation: Health and Quality of Life Outcomes 2025 23:26
    Content type: Research Published on:

  27. Current measurement systems focus mostly on health, and not on multiple constructs of quality of life outcomes (for example health and social outcomes) together. This means we don’t capture all that is of valu...

    Authors: Brendan Mulhern, Akanksha Akanksha, Richard Norman, Mina Bahrampour, Peiwen Jiang, Deborah Street and Rosalie Viney
    Citation: Health and Quality of Life Outcomes 2025 23:25
    Content type: Research Published on:

  28. Health-related quality of life is an important measure of patient-reported outcomes. There is limited evidence on how parental health-related quality of life develops after neonatal hospitalization.

    Authors: Julia Karsch, Mascha Schönfeld, Ann-Kathrin Mühler, Susanne Tippmann, Christine Arnold, Michael S. Urschitz, Eva Mildenberger and André Kidszun
    Citation: Health and Quality of Life Outcomes 2025 23:24
    Content type: Research Published on:

  29. Mental wellbeing is an important focus in surveys among adolescents. Several relevant instruments are available. In the Nordic part of the Health Behaviour in School-aged Children (HBSC) study 2022, four diffe...

    Authors: Leif Edvard Aarø, Otto Robert Smith, Mogens Trab Damsgaard, Anne-Siri Fismen, Marit Knapstad, Nelli Lyyra, Oddrun Samdal, Einar Baldvin Thorsteinsson and Charli Eriksson
    Citation: Health and Quality of Life Outcomes 2025 23:23
    Content type: Research Published on:

  30. Glioma are infiltrative primary brain tumours, which despite treatment, lead to a substantial reduction in life expectancy. Seizures are a common symptom of glioma, and have a serious impact on patient health ...

    Authors: Tomos Robinson, Matthew Breckons, Helen Bulbeck, Michael D. Jenkinson, Robin Grant and Luke Vale
    Citation: Health and Quality of Life Outcomes 2025 23:22
    Content type: Research Published on:

  31. Computerized adaptive test (CAT) provides individualized measurement, using the patient’s previous responses to select the next most informative item. However, the first item, the start item, is usually not in...

    Authors: Morten Aa. Petersen, Hugo Vachon, Johannes M. Giesinger and Mogens Groenvold
    Citation: Health and Quality of Life Outcomes 2025 23:21
    Content type: Research Published on:

  32. Patients with severe mental illnesses(SMIs) often experience a diminished quality of life(QOL), and a validated tool to assess their QOL remains lacking. This study aimed to evaluate the psychometric character...

    Authors: Yang Wang, Xia Zhang, Jiajia Dong, Jianwen Zhu, Jie Fu, Sizhe Wang, Jinxin Li, Yue Zhang, Jianxiao Zheng, Lu Wen, Dianjiang Li and Hong Fan
    Citation: Health and Quality of Life Outcomes 2025 23:20
    Content type: Research Published on:

  33. To analyse reliability in terms of concordance (agreement) and equivalence of the Patient Reported Outcome Measures (PROM) with an electronic modality (ePROM) of the recognised questionnaires assessing of xero...

    Authors: Mario Lozano-Lozano, Maria Lopez-Garzon, Paula Cuadrado-Guerrero, Paula Postigo-Martin, Carolina Fernández-Lao, Isabel Tovar-Martín and Noelia Galiano-Castillo
    Citation: Health and Quality of Life Outcomes 2025 23:19
    Content type: Research Published on:

  34. Health literacy among family caregivers has been found to be strongly correlated with health exposures and outcomes for their children. Accurate assessment of their health literacy contributes to improving chi...

    Authors: Yitong Jia, Xinqi Zhuang, Yanzi Zhao, Ge Meng, Jianzhong Zhang, Yueying Cao and Yin-Ping Zhang
    Citation: Health and Quality of Life Outcomes 2025 23:18
    Content type: Research Published on:

  35. Estimation of health-related quality of life (HRQoL) in diabetic retinopathy (DR) patients is important to assess the impact of disease, to monitor the treatment outcomes, and conduct health technology assessm...

    Authors: Neha Purohit, Aarti Goyal, Vishali Gupta, Parul Chawla Gupta, Prakash Singh and Shankar Prinja
    Citation: Health and Quality of Life Outcomes 2025 23:17
    Content type: Research Published on:

  36. Prosocial behaviors refer to a variety of voluntary actions intended to benefit others and the society. They have consistently proven their capacity to promote individuals’ well-being and personal development....

    Authors: Sarah Gerges, Vanessa Azzi, Zeinab Bitar, Mariam Dabbous, Sahar Obeid, Feten Fekih-Romdhane and Souheil Hallit
    Citation: Health and Quality of Life Outcomes 2025 23:16
    Content type: Research Published on:

  37. Implementation of patient-reported measures (PRMs) is an integral element for patient-centered models; however, there is still hardly any quantitative evidence regarding its impact in routine care settings. Th...

    Authors: Clara Amat-Fernandez, Yolanda Pardo, Montse Ferrer, Guillermo Bosch, Catalina Lizano-Barrantes, Renata Briseño-Diaz, Maria Vernet-Tomas, Lluís Fumadó, Marc Beisani, Dolores Redondo-Pachón, Anna Bach-Pascual and Olatz Garin
    Citation: Health and Quality of Life Outcomes 2025 23:15
    Content type: Research Published on:

  38. Hungarian SF-36 population norm data were last collected in 1997–1998 and have not been updated since, reducing their relevance and limiting their usability and comparability. This study aimed to establish con...

    Authors: Alex Bató, Valentin Brodszky and Fanni Rencz
    Citation: Health and Quality of Life Outcomes 2025 23:14
    Content type: Research Published on:

  39. Despite considerable research on the association between Personality Traits (PT) and Quality of Life (QoL) in patients and older adults, this association remains poorly understood among the middle-aged general...

    Authors: Danial Habibi, Roqayeh Parsaei, Hamidreza Roohafza and Awat Feizi
    Citation: Health and Quality of Life Outcomes 2025 23:13
    Content type: Research Published on:

  40. Hereditary angioedema (HAE) adversely affects health-related quality of life (HRQoL). HAE often compromises the HRQoL due to the impact on functional capacity caused by edema, pain, other symptoms, and psychos...

    Authors: Irene Baroni, Giulia Paglione, Giada De Angeli, Miriam Angolani, Edward Callus, Arianna Magon, Gianluca Conte, Stefano Terzoni, Maura Lusignani, Rosario Caruso and Andrea Zanichelli
    Citation: Health and Quality of Life Outcomes 2025 23:12
    Content type: Review Published on:

  41. Assessment of cognitive function is essential to identify the impact of brain aging, disease or injury on individuals. The Short Form Cognitive Function Scale is a brief instrument, easy to use in clinical and...

    Authors: José Fernando Mora-Romo, Luis Alberto Mendoza-Contreras, Rafael Armando Samaniego-Garay, Isauro García-Alonzo and Filiberto Toledano-Toledano
    Citation: Health and Quality of Life Outcomes 2025 23:11
    Content type: Research Published on:

  42. Measuring the quality of life in patients with cystic fibrosis is important, both in terms of assessing the implementation of new therapies and monitoring their effects, as well as the ongoing evaluation of pa...

    Authors: Dorota Snop-Perkowska, Jakub Świtalski, Katarzyna Wnuk, Paweł Olszewski and Anna Augustynowicz
    Citation: Health and Quality of Life Outcomes 2025 23:10
    Content type: Review Published on:

  43. The assessment of Health-Related Quality of Life (HRQoL) is essential in clinical outcomes, focusing on the subjective perception of individuals regarding the physical, mental, and social aspects of health sta...

    Authors: Vitriana Biben, Farida Arisanti, Efi Fitriana, Erika Maklun, Vindy Margaretha Miguna and Nabilla Fikria Alviani
    Citation: Health and Quality of Life Outcomes 2025 23:9
    Content type: Research Published on:

  44. The relationship between social support and functional outcomes and health-related quality of life (HRQoL) after ischemic stroke (IS) remains unclear, especially in working-aged patients.

    Authors: Elena Gurková, Daniela Bartoníčková, Daniel Šaňák, Šárka Šaňáková, Jana Zapletalová and Lenka Štureková
    Citation: Health and Quality of Life Outcomes 2025 23:8
    Content type: Research Published on:

  45. AADCd is a rare neurometabolic disorder presenting in infancy. Children with AADCd have motor dysfunction and development delays that result in the need for lifelong care; quality of life is greatly impacted. ...

    Authors: Berrin Monteleone, Katie Forster, Gin Nie Chua, Rongrong Zhang, Andrew Lloyd, Paul Castellano and Ioannis Tomazos
    Citation: Health and Quality of Life Outcomes 2025 23:7
    Content type: Research Published on:

  46. Laryngeal cancer often leads to total laryngectomy (TL), which results in the loss of natural voice, necessitates voice rehabilitation and affects the individuals Quality of Life (QoL). Despite advancements in...

    Authors: Tatiana Pourliaka, Efcharis Panagopoulou and Vassiliki Siafaka
    Citation: Health and Quality of Life Outcomes 2025 23:6
    Content type: Review Published on:

  47. Given the recent update of SF-6Dv2, detailed data on utility scores for cancer patients by cancer type remain scarce in China and other regions, which limits the precision of cost-utility analyses (CUA) in can...

    Authors: Yuchun Tao, Yiyin Cao, Lijun Xu, Jiaxuan Shi, Lei Leng, Hongbin Yang, Tiemin Zhai and Weidong Huang
    Citation: Health and Quality of Life Outcomes 2025 23:5
    Content type: Research Published on:

  48. Validated patient-reported outcome measures (PROMs) are crucial for assessing patients’ experiences in the healthcare system. Both clinically and theoretically, patient-centered consultations are essential in ...

    Authors: Anne Holm, Anna Bernhardt Lyhnebeck, Sussi Friis Buhl, Kristine Bissenbakker, Jette Kolding Kristensen, Anne Møller, Anders Prior, Zaza Kamper-Jørgensen, Sidsel Böcher, Mads Aage Toft Kristensen, Asger Waagepetersen, Anders Hye Dalsgaard, Volkert Siersma, Ann Dorrit Guassora and John Brandt Brodersen
    Citation: Health and Quality of Life Outcomes 2025 23:4
    Content type: Research Published on:

  49. Idiopathic pulmonary fibrosis (IPF) is associated with high mortality, heavy economic burden, limited treatment options and poor prognosis, and seriously affects the health-related quality of life (HRQoL) and ...

    Authors: Guixiang Zhao, Siyuan Lei, Ya Li, Zhenzhen Feng and Jiansheng Li
    Citation: Health and Quality of Life Outcomes 2025 23:3
    Content type: Review Published on:

  50. Esophageal cancer impairs basic functions such as eating and drinking frequently resulting in difficulty swallowing (dysphagia) and other problems such as weight loss, pain, fatigue, and taste alterations. The...

    Authors: Tseganesh Asefa, Winta Tesfaye, Gedamnesh Bitew and Hiwot Tezera
    Citation: Health and Quality of Life Outcomes 2025 23:2
    Content type: Research Published on:
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Health and Quality of Life Outcomes

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